Turned up again

Turned up again today..So i was upped to .75 in and out and then my pulse width was lowered to 250....due to my having trouble catching my breath sometimes when it goes off..i can tell a difference because of the pulse width--but he is hoping that maybe someday to go back on it..Since there are no changes in my seizures we added a second med; phenobarbitol...i have never had this one as it's kind of strong i guess....but i said i would give it shot. The goal is to be seizure free right--well i don't want to not at least try something if it's not gonna hurt me too badly. So for now things are fine... but the adjusting of the meds could be fun since it's been awhile since i tried something new...kind of used to my schedule now ya know...will keep you posted on if i notice changes....i am gonna start a log on my seizures as another blog and will post that link in my links once i get it up and running....

A week away from getting raised again

I want to let you know i ge tmy VNS upped on May 31....now.....i hope to get the pulse down but the last day or so that hasn't bugged me anymore---maybe i have to get used to it--i can't wait til i get to a level where maybe something will work---if not for the seizures that for the depression---one or the other is fine with me both would be a blessing...i have talked to several via emails and that support surely helps too Toodles

3 months post op

Well not much has changed seizure wise but my nuero wasn't expecting it and well i wasn't getting my hopes up either LOL
I will take a picture of my incisions soon and put them up they are pretty ugly but life goes on.
I am currently on .50 amps and 500 pulse...
while i was in washington dc in early may the pulse about knocked the breath out of me--especially when FAST walking up to the capitol building or the hike up to the ampitheatre for the changing of the guards at Arlington National cemetary.. i would have to stop when my vns went off---as i couldn't cathc my breath---normally it doesn't bug me although i do feel a twinge in my chest or tightness when it goes off...
Gonna ask my nuero when i go in on the 31st.....if this is problem--as i am a swimmer---even with a buddy losing my breath or something like that under water would be bad--maybe i just keep my head above water... i need the pulse to go down i imagine...
Taking it slow and seeing what happens..i should be posting a tad more as i just got a new puter my old one DIED...and the one left barely runs....
Talk to ya soon
KIM