Thursday, April 27, 2006

a seizure'

found this on a friends blog and its' awesome to see

A link from a friends BLOG MY ANSWER:: too soon to tell but i have hopes!!!

I got turned up

Ok so today isn't so fun..I hadn't written in awhile because there had been no changes. I got used to the .25 setting and all but no changes to my seizure levels...which of course the dr said there would not be yet..They increased it yesterday to .50 and pulse of 500[the pulse is the same] and it takes my breath away...I am adjusting to it---and a little dry but when i am talking it definitely interupts my sentences....I leave in a week for Washington DC with the HS band and pray by then i am at least dealing with the change a bit better. Didn't sleep well alst nigth as i could feel it again...We are to begin loggin my seizures to see if the average changes any....i currently avg 10 or so a month....we want to start seeing it drop. h e figures it won't drop until i am at least at 1.00 so have a way to go..Several people have been really negative on my VNS recently..i want to set the record straight--I know that this is not a guarentee that it would take away my seizures..and i know i will always be on my medications...For me if it works a little it is worth it. With three children and a loving husband...i can't ask for anything more than a little better---NO SEIZURES would be great...but i couldn't wait 5 or so years and then try it--what if it makes my life a little better now--don't my children deserve that now while they live at home and have to deal with it every day. Once they are out on their own---which for my oldest he leaves for college in a little over two years....he deserves the best of me now not later...The risk of the surgery is no different and for me was not worth waiting--now if they said lets remove your brain--I don't know---that one to me is way to risky--i can't imagine waking up and not knowing my family--and the devastation that would do to them--this is one of my last choices...and my family and i deserved the chance---and i couldn't get approved jsut for the depression so if it works for taht as well[ i was approved for BOTH] then amen--it has helped me..just knowing i tried it has made me a bit happier and POSITIVE..because maybe changes are coming but if not--I TRIED!!!!

Current settings
Output Current (milliamperes).50

Signal On Time (seconds) 30 seconds
Signal Off Time (minutes) 5 minutes
Magnet Current (milliamperes) .50
Magnet On Time (seconds) 30 seconds
Magnet Pulse Width (microseconds) 500

Sunday, April 09, 2006

Well it finally happend

Well it was bound to happen. I had a seizure this morning on my way up to communion in church. I have about 90% of my seizures in the morning..before noon and the odds of it finally happening at church was pretty good.
I am lucky--several nurses attend our church and sat with David in the isle while i came to. People came up to me after church and emailed me once i got home to tell me NOT to stay away---to not let me falling on my face in church keep me away.
I am hoping eventually that the odds of having them get slimer as my vns is turned up--or if nothing else the depression/anxiety gets better...we shall see as i get it turned up again on the 26th.
Thanks to everyone who got me through today..Especially my family and the people at church who cared enough to help and not ignore me once it was over.

Friday, April 07, 2006

Wanted Poster Generator - Make your own Old-West-style Wanted Poster (and use it as an MSN display image)!

Wanted Poster Generator - Make your own Old-West-style Wanted Poster (and use it as an MSN display image)!

HAHAh this was FUN>>>>and we all need fun...has NOTHING to do with VNS but well i hardly work since i have epilepsy hahaha My VNS is doing well....i can't feel it but notice no difference yet---well i can feel it if i want to think about it--but in general i am FINE..see the dr the 26th will update ya then